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Any mothers out there with babies with Sensory Integration Disorder?

I am a mother of a 2 year old who has been diagnosed with Sensory integration disorder.  he is adopted and at birth was born addicted to several drugs.  We have started therapy but I am not seeing any results from the therapists yet... I am doing the same thing at home that she is doing at therapy.  I need to know how to survive going to Church, out to eat, making transitions easier such as going to bed...etc.

I am hoping someone will send their ideas or experiences to me!!!

Please!!!

posted November 14, 2006 - 8:08pm

Comments

See MamaHall's user profile
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MamaHall wrote 2 years 5 days ago

I'm not familiar with Sensory Integration Disorder, but I found this website with resources that may be helpful:

http://www.kid-power.org/sid.html

-MamaHall

See TheMentorMom's user profile
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TheMentorMom wrote 1 year 51 weeks ago

Hi mommyof3boys!  I actually work with toddlers with developmental delays many of whom have sensory integration difficulties.  I might be able to help if I have a little more information:

  • Does he have any other diagnosis?
  • What are his likes and dislikes, ie, does he dislike loud noises, is he sensitive to touch,  etc.
  • What things are the therapists having you do to address the sensory issues?

 Hope to hear from you soon!

See stacaro5's user profile
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stacaro5 wrote 1 year 44 weeks ago

mydaughter was diagnosed with SID @ 15 months.she never crawled and didn't walk until 18 months mostly due to not liking the feeling of the carpet on her hands. she also did not like crowds and loud noises. too much stimuli would make her miseable. she received physical therapy to get her walking and moving, speech therapy to work on oral tactile (she licks everything and if the texture is something offensive she wouldn't eat it), and occupational therepy.  Now she is 4 1/2 years old and is doing fine. there are some issues she / i need to work on come season changes like tank tops or long sleeve shirts, and walking barefoot in the grass, but she seems to be doing fine. the best advise i have is to keep going to your usual events and when things seem to be getting ruff take a walk outside for 5-10 minutes to ease the sensory overload. i also did "music together" with her and lots of play dates with other kids her age to help her get through, again when it was too much sometimes we left. but for me isolation was not the answer and i just made sure she knew it was ok and that we could leave if need be. best of luck to you. you should check into whether you have an "early intervention" program run by your county. they are free services provided to you such as pt, ot, and speech therapy.

See mommaboo's user profile
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mommaboo wrote 1 year 35 weeks ago

My daughter will be 2 on the 26th of this month. She was diagnosed early Jan. with SPD , as a sensory seeker , & she also has a speech delay . But just with over a month of therapy has made great strides!! She just likes to tip toe walk, sping, crash into things, cant concentrate some times...  Things wont change over night, talk with the therapist, and let them know your concerns Smiley

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mommaboo wrote 1 year 35 weeks ago

oh i forgot to put, sadly we dont take her out to eat, nor do we tackle church, getting her to go through Target or the grocery store is challenge enough.. Im still figuring this all out myself. I think just try and have patience!

See Antonia Rose's user profile
01
Antonia Rose wrote 1 year 34 weeks ago

My daughter has  the same thing your baby has. I can tell you that I had all the same feelings about going to church and out to eat and how I was going to handle everything, My daughter is nine now. She is a beautiful girl that still needs occupational therapy but she is integrated in a regular classroom. No special Ed. My church has been very supportive. I realized of all places on the earth that I would come across I would find more stories of hope and strength there. Plus as my child grew I saw her as more of the beautiful baby that she was meant to be then all the worries I had at the start of her young life. The not knowing what to do is the hardest, but once you let go and step back you will see all you can do is love your baby. It will be different, yes. However just keep looking into the eyes of your baby and other people will not even enter your mind. One thing I learned right away was that my daughters needs would be constant which I was not as used to with my last child. I took for granted that I had  baby that would know how to sit up and hold a fork.

It has been different for sure but I always made sure that I found out from her OT any exercises or games that I could do that might help her gain more strength. One more thing, Claire also has downs syndrome so she when she was born I did not want to go back to church because I was ashamed. It is a hard for me to put that out there but when I saw your question I felt  I should answer it for the both of us. As I said at the start Clarie is doing great. She is in the 2nd grade in a regular class in Redwood city CA. So Your baby is going to be fine just like Claire and do you know why? Because its late and I have this funny feeling in me; It is just by chance I saw your question and I know in my heart you baby is going to be like Claire because they have mothers who care enough to write people they do not know. take care. a.r.

See mbrhoads's user profile
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mbrhoads wrote 1 year 30 weeks ago

As I watch my 2 1/2 year old daughter, jump off the couch, land on the hardwood floor, and say You OK? to her Curious George Doll, I think 8 months ago, she wasn't speaking nor progressing developmentally.  My daughter has sensory processing disorder, she is vestibular and proprioceptive seeking and tactile defensive. Orally she is extremely defensive.  After an intensive 9 months of therapy, we can go out to dinner. We have to make sure it is a kid friendly place. Don't expect your child to sit still during dinner. It is not possible, their bodies need to move. Church, we haven't tried that one yet. We will when her ability to understand the need to sit still increases. We work every day on her sensory diet and making sure her needs are met. It is exhausting, but when she finally said " Mommy, I need help"  Well, it is all worth it.  Keep up with the therapy. You will see great strides.

 mb

See aceing1204's user profile
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aceing1204 wrote 1 year 8 weeks ago

I have 21 month old that has sensory issues, we were just reccomended to a sensory gym. He makes sounds and mimics us but he rarely waves bye bye and doesn't really talk. However he palys well with his toys, and loves to laugh and play chasing games. I'm so worried about him because I can't picture him talking at this point. He's also recieving speech therapy, OT, and PT. Does anyone know anything that might help me to feel better like will he ever be a completly normal child? I feel like I have a lot of work to do with him and it stresses me out. Please help.

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